Who stops Dad’s dialysis?

Dont stop me nowIsabel wrote to me last week:

I have an 86-year-old father who has only been on dialysis for 2 years, but he’s also battling lung problems-COPD, early stages of Parkinson’s and hypertension. He’s bed ridden and lays on his bed all day long day after day. Sometimes a friend comes over and helps us move him to his chair but my dad gets frustrated that he can no longer walk. (more…)

Stopping dialysis: Really?

1-Nike® Try to Stop Me-001Doris recently wrote:

My husband has been on dialysis for 3 yrs this May. Before kidney failure he had diabetes and heart disease. To look at him, you wouldn’t think he was sick at all. But this year in December, he is planning to stop dialysis.

The thing is, I don’t blame him. With all these diseases he has been through hell.
He doesn’t really think he’s going to die, and that would be so awesome.
So he’s trying to see if there is a way to control his potassium. Any suggestions?

Hi Doris. (more…)

Guest Post: To Be or not To Be: The Dialysis Decision

Back in May 2009, after yet another funeral, I wrote There are only three Ways Out, about the three choices we have with dialysis.  Around the same time, Robert Longstaff, then a newly nominated BigD club member in Sydney, faced the same decision.  He looked at the alternative squarely in the eye and after much reflection decided to keep going.

Fortunately for us, Robert put his thoughts during that time to paper, and has kindly consented to share them with us and the BigD community at large.

TO DIALYSE OR NOT (more…)

Stopping Dialysis: how long before The End?

sunsetGetting bogged on a muddy road is not normally a life-threatening situation.  Unless you are driving 475km (300 miles) for dialysis on a muddy dirt road after floods.  A guy in the Queensland outback was doing exactly that three days ago, travelling from Mt Isa to Doomadgee Hospital, a nine-hour trip.  He and three companions, including his son, were travelling along the muddy Thorntonia Rd, a 56km (35 mile) stretch about half way there, when they were hopelessly bogged.

They spent the night in the car (more…)

There are only three Ways Out

I went to Janine’s funeral yesterday.  Janine was a long-term BigD friend, who’d been dialysing for 15+ years.  The BigD community (recipients, their families, and clinicians) is a long-term proposition, like a special interest club.  We all have a common interest (kidney stuff), we spend time together (no matter what!), we learn from each other and some of us become close friends.  Janine was a gold-class club member. (more…)