Just starting PD and looking for support

Anna emailed me last week:

Hi Greg,

I stumbled across your blog while looking up info on PD catheter surgery info.

I am a 47-year-old  mom of a beautiful 2-year-old child in California. I inherited high blood pressure and kidney disease. All my siblings in our family have kidney failure.  It kicked in around late 30’s and early 40’s. I was diagnosed the latest at 45 and think it advanced due to my pregnancy.  We were hoping my numbers would go back to normal after the baby but no such luck. (more…)

Speaking of dialysis…

1-IMG_1532As I hoped, here is the video of my speech to the Diaverum Annual Conference at Cascais, Portugal, last month.  It was called: The View from the Chair, a Patient’s Perspective.

It covers a bit of ground, but the highlights (apart from the joke at the start!) are: (more…)

Help redesign Peritoneal Dialysis

Christine from the University of New South Wales emailed me a couple of weeks ago with the following request:

Hi Greg,

My name is Christine Chau, and I’m a 4th year Industrial Design student studying at the University of New South Wales. I stumbled across your BigDandMe blog and I’ve been reading all your posts with great interest! (more…)

The Big(D) questions: How to keep going; PD, HD or a transplant?

Last week was a big week for questions, and rather than answering them in the Comments area, it seems like a good idea to discuss some in a post.

First, Dan wrote:

Hi Greg, I’m 30 years old and I have PKD, I’ve had a transplant which unfortunately failed in January 2012. I spent a few months training to do haemo myself so I could do it at home (thinking that would make it much better) how wrong I was!  I’m not sure if it’s my age and the need to stay active but dialysis is driving me mad! I get very fidgety and agitated especially when I’m on the machine and sometimes I get so angry when I’m on there I just want to smash the bloody thing up! (more…)

Dialysis, fistulas and body image

Mona bit-fallI am a bit late with this post because Julie and I went to Hobart in Tasmania to visit the Museum of Old and New Art – MONA this weekend (a joint birthday present from our kids).  We left straight after Saturday dialysis and came back Sunday night.  It was a real treat.  We stayed in the city at the Old Woolstore Hotel, which was very nice – each room is an apartment, with cooking and cleaning facilities (none of which we used, because we were on a break!).

It was a ten minute walk along the waterfront (dawdling, looking at fishing boats and tall ships and buying a fried fish snack from one of the houseboats tied up to a jetty – it was as good as it smelt) to get to the ferry that takes you to MONA, 30 minutes up the river. (more…)